Words (Photo credit: sirwiseowl)
My Son Has Speech Delay and nobody will help me. I am a mum on The Real Supermum’s Facebook group and I wanted to share my frustration here on the blog. I am a mother to two boys aged 2 and 4, both have very bad speech delay. My 4 year old son cannot get the words out and is delayed because off his speech. He is also very shy and my 2 year old son also has bad speech delay as he his copying how his older brother talks.
Both My Sons Have Speech Delay
For example the word dad, he says gaff as he can’t get certain sounds out. The word drink will be pronounced as gink. It affects my younger son greatly as he is learning from his brother. My 4 year old son gets very frustrated, angry and upset as nobody can understand what he says. It is so hard for me as his mother to watch how much he struggles daily.
My 2 year old son also has had 6 hearing tests since birth and keeps having a low reading in his right ear, they think this is down to glue ear and he needs to be seen again when he is 3. I find the children’s hospital is amazing for my 2 year olds hearing, but I find no help for my children’s speech delays.
All the health professions say to me is how I can help at home and then leave me to it on my own and I feel that is not fair. I am not a professional, I am not trained to know what to do in that field and I am afraid I could damage them more. I just want them to teach me how I can help my sons.
It all started with my 4 year olds speech; at the age of 2 I noticed that something wasn’t quite right. My little boy has had hearing problems from birth and I wish I had more help from the speech side off things and not to feel so alone.
I also have a 6 year old who is a twin, he was born prematurely and a very small size. He was in NICU for 5 weeks. He has not been doing well in school; we have noticed he has fallen behind from his reports. They state he is behind and well below average for his age. This is for every subject.
The school are not happy to help, it upsets me to see him find it so hard, he cannot even read a book . You can tell him the word and the same word could be on the next page and he would forget what the word was.
The school are quick to say he is way below average but when I ask about getting him added support in school they tell me time and time again that he will get there and they key is just to do stuff with him at home.
I am not happy about this and have asked the school for more help but they have told me they will look it to it when he is in year 3. By then he will be even further behind others his own age. I receive no help for this and I am worried he will get bullied the longer it goes on. I wish I knew what I could do to get him the help he needs.
About The Real Supermum
I can’t believe you’re not getting any help! My son is almost two and is slightly behind in his speech and the hv said if It hasn’t improved in a couple of weeks then she’ll refer him to a speech therapist. If I was you I’d got to the GP and demand to be reffered. Also try and get his school teachers to try ans write a letter for ur GP stating he’s behind with his speech x
How sad that you are being let down by the very system that we pay our taxes and national insurance for!!!!
The health profession always seem to have this attitude of helping only those who are deaths door, not the rest of us.
My only advice is to persevere. Keep going back to the GP, get an appointment with children’s services. Demand you want more than just a book of sounds to do at home.
It’s so easy just to blame the mother these days…
I totally get how you are feeling right now chick. My 4 year old son is the exact same way!! He has glue ear and had grommets fitted last year to help his hearing and bring on his speech, or so we thought! His hearing is better, but his speech hasn’t really improved much. We don’t have any help from SALT (speech and language therapist), hes not in school yet but the nursery tried to help but with such little help from outside agencies like SALT, Health Visitors, Doctors and Pediatricians we didn’t get any where at all. No one seems interested in helping. I found that a book called Hanan it takes two to talk really helps as well. These can be found on amazon although they cost a fair few pound they are worth it. If you need someone on facebook to talk too, then you can add me or inbox me (Laura LaLa Matley) im always here if you need to chat xx
That’s awful hun that ur not getting the support and help for your sons. The SALT team should really be helping you! X x
thats bloody disgusting it really is that the school will not help hun, i’d fight them n keep fighting and even write a letter to ur local mp on it , big hugs as anyone can see ur doing ur very best n don’t put urself down , its the drs/hv n school that should b ashamed of themselfs xx
Can’t believe you’re not getting any help! Keep fighting hun and try get any support you can to get what your children deserve ..
That’s really horrible hun
Keep fighting! They’re get the point eventually, I hope x
my daughter is pulling her son out of school and home schooling him next year due to lack of support on his issues as well. Sometimes the very system that is suppose to help lets you down badly. You are quite torn because if you start correcting the younger sons speech that he copies from the older one then you will be making the older one feel inadequate, but by not correcting him you will never know the problems he has of his own ( if any)
I can’t believe your not getting any help
my sins had speech therapy and it’s helped him so much keep fighting with them Hun gi to your go every day if u have to x
my daughter also has speech delay yet she had her speech and language therapy and they have discharged her at just 16 months old!!!
Thats awful how much you are being let down by the system. Keep fighting hun xx
this is so wrong! i cant believe they are leaving your son with no support. appalling. keep fighting! it will be worth it xx
its terrible that your not being helped! hope something gets done soon!x
Cant believe you are not getting help … Hope you get the help you need soon hunni x
I can’t believe your not getting any help?!! My son is nearly 3 and my health visitor is trying to get him speech therapy, keep fighting xx