My daughter was born a normal healthy child, but 1 thing I noticed was the look on the doctors faces when they spotted the birthmark on her right arm, everyone that saw it would pause and study it closely. Something told me this was no normal mark from their reactions, I was right. At 2 weeks her arm started to change colour, it became an intense red colour, the midwife said ‘nothing to worry about, just a strawberry birthmark. At 6 weeks her mark had grown so big I couldn’t get sleeves over it, after a trip to the doctors she was refered to hospital for it to be checked. At 8 weeks her appointment came around & by this time the skin had just started to split , the diagnosis was ‘ULCERATED HAEMANGIOMA’ A condition in where a strawberry birth mark ulcerates, a very rare occurrence!
From then on we were in and out of hospital for months on end, my poor baby’s arm had burst, there were holes appearing and she would cry in agony. Then came the hard part, I was the one that had to dress it morning & night, this continued until she was 6 months! By 7 months her arm was so bad her arm muscle was actually visable, a flesh eating bug had ate away her flesh. I can’t imagine the agony she must have been in. We started her on a very high dose steroid treatment to try & shrink it, it made her so poorly and her face swelled up. She didn’t grow an inch for 7 months, it stunted her growth and damaged her immune system. She wasn’t allowed around children, people had to steralise their hands before they could touch her and at 9 months old, we nearly lost her.
Just a normal illness, gastroenteritis and yet in the space of just 12 hours, she was lifeless, she slipped unconscious in the doctors room that morning and she was rushed to hospital in an ambulance on oxygen. The most scariest moment of my life!!!
We were in hospital for a week and managed to make it out just in time for her first Christmas. Finally we were making progress, a new treatment had just been discovered accidentally, so unfortunately we were the guinea pigs, but the risks of the steroids were worse, so we went for it. At this point we were trying to save our daughters arm and the risk of her developing diabetes or osteoparosis from the steroids.
By her 1st birthday, result, the new medication was working so we could start downing the steroids until she was completely off them. We couldn’t have been happier. Finally at the age of 14 months she was finally allowed to play with kids, to play in the garden, to go to the park, to do what every other child did. It was alien to her, but she soon go into the swing of socialising, me however had to listern to the whispers, the points and stares from ignorant people.
Yes she had a huge scar down her whole fore arm, yes it looked like a burn scar, but the moment an adult said to her ‘oh dear, has your mummy been silly and had an accident’ I was mortified, she thought I had had an accident with a cup of tea. Well, from that day I decided I would stick 2 fingers up to the ignorant people out there and flaunt my daughers beautiful ‘butterfly’ (as her friend calls it) If it didn’t bother my daughter than it didn’t bother me.
She will never remember what happened to her, I will carry the mental scars for her & i’m so glad I can do that for her so she doesn’t have too…I just wish I could have done the same for the pain. That experience has made us into the people we are today…2 years old & I wouldn’t change a thing about her, she’s perfect in everyway..scars and all! I’m so very proud xxx






aww bless her
some people can be mean and jump to conclutions far to quickly! im glad you and your daughter arent bothered by it though
xx
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Thank you hun, we love her little butterfly
x
My nephew had a strawberry birthmark on his head..Luckily it didnt turn nasty and as hes got older has disapeared! Glad everything is ok now
xx
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Thank you hun, i’m so glad his was nothing to worry about
x
Can’t imagine what you must have gone through, or the suffering of your dear little girl. It is so sad the people always have to gawk and comment at any injury or anything that looks a little different. And it angers me that there is always someone who jumps to conclusions. It is wonderful that all is well now. Big hugs to you all for your courage. xxx
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Thank you so much hun
we have both come out stronger for it x
My son had one of these on his back. but he was lucky it went by the time he was one and now u cant even see were it was
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Wow! What a brave little girl! Glad she is fully ‘mended’ now and doesn’t have to go through any more pain! xx <3
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Thank you hun xx
Ahh, bless, I sort of know how you feel.
My daughter has Cutis Aplasia on her head. It’s sort of where her crown would be, but she has 2 scars there, i know in time it will be covered by her hair ( when it decides to grow) but the stares + whispers really upset you..
My fiance has a birthmark on his back – his is a patch of hair..
He has tattoo’s on his back which are amazing, real artwork, but people always ask about “patch” as we call it. I think it’s really unique + different but he’s really self concious of it because of all the hassle he got in school.
xx
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It’s a shame isn’t it that people have to comment, sometimes I forget she even has it & when someone asks me I’m taken by surprise as it’s really not an issue anymore! The questions I don’t mind..the whispers I hate! I’m sure your little lady won’t let it bother her either
xx
oh my gosh! could never imagen what you as parents went through! you have a very brave little girl and she has very strong mum! im so gald she is better and has no more pain!! xx
my little girl has a birth mark on the back of her leg and it is the same as her dads the spitting image! very weird xx
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Thank you hun, I’m so proud of her xx
awww bless her some ppl can jump to so many conclusions b4 they know the real answer to what happend my lo got a brown birthmark on her arm too but im not hiding it or if ppl dont get used to seein it u get them staring or askin questions
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Happy to hear that she is fine now .. what you went though must have been hell.. my uncle has a birth mark on his neck and it looks like someone has burnt all of the back of it..he get stares now and his 50 odd.. society are bad at pre-judging… chin up and show them they know nowt!!
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Thanks hun
x
aw what a brave lil girl. ignore the people who easily judge when they dont even have a clue xx
Thank you hun
x
oh my goodness how awful to have to go through this, I’m really glad alls well now though hugs!! xxx
me and my sis have the same birth mark… but luckily only a small brown mark. my lo has one on his tounge… looks like hes had it periced!
for most their not a problem, but i have known someone to have a baby with strawberry mark on her face, but it was massive, i felt so sorry for her, i know you cant help these things, and baby was healthy which is the main thing, but what the mother must have been feeling by it cant have been nice. must of been a shock when she was born,.
She is so brave.. and so are you! Its horrible when people think badly of you. No one should ever judge. If they don’t know the full story.. they should either A) ask or B) keep their opinions to theirself. Even coming to their own conclusions can cause all kinds of damage! :/ I’m so glad its all over for you & your princess now hunni xx
Ive got a strawberry birth mark on my hip, but it has disappeared now. Im so glad she is ok now though, ignore the ignorant people they dont know what they are saying x x
Awww poor lil thing!
I’ve never know Birthmarks could be so bad.
I’ve got one, it goes from the sloe of my foot, all the way up the side of my left leg & onto my bum! Thankfully I can hide it but don’t see why I should have to.
I had 7 years of laser treatment on mine, from 7 till 14 & now I’m 23 & trying to get funding for some more as I hate it & hate the stares & questions.
Glad she’s better now. It’s hard but ignore the ignorant people x
Oh bless you both, must have been so scary. glad to hear she is doing well now! xxx
Aw bless her hun! Your daughter must be such a strong, brave little girl. You do right by ignoring the ignorant people that jump to conclusions, if me and my daughter had of gone through this and someone said that I really do think I’d have lamped them so well done you for just ignoring it all. Your daughter is now a happy, healthy toddler and like you said thankfully she won’t remember any of it. x
awww bless chick at least shes ok now hun xxx
Aww bless her
must of been horrible, luckly she had a amazing mummy with her to get her few it!! X hugs xx
such a brave little girl xxx